Jack65
5 posts
Feb 03, 2010
5:56 AM
|
Seeing I am new to this disease was diagnosed last Nov. I am wondering what others biggest struggles are? For me I am so damn stiff all the time! My tremors seem like nothing compared to the stiffness.
|
Mihai
279 posts
Feb 03, 2010
7:04 AM
|
Hey Jack65, For me, without a doubt, the biggest struggle is slowness and weakness. When I'm in an "on" period, I am "normal." However, when I'm in an "off" period, I am slow as molasses in doing anything. It's like night and day....I get frustrated at how impaired I am in the "off" times. That's what I struggle the most with...the ups and downs! Thank goodness for medication...sometimes I think (no, I know) I'd be in trouble without it!!! Peace,
Mihai
|
redrac
5 posts
Feb 03, 2010
7:51 AM
|
Well I just got diagnosed, but I would say fatigue. Don't take much to tire me out. Weak shaky legs don't help either. And fumbling for thing like keys or debit card.
|
PeterL
24 posts
Feb 03, 2010
9:07 AM
|
Stiffness especially neck and shoulders,slowness,confusion,no left arm swing DX'd Nov 09
|
MarciaJ
105 posts
Feb 03, 2010
11:47 AM
|
Fumbling fingers frustrating. But my dog would say the toe curling and unsteadiness because I can't walk her like I used to.
|
emma45
155 posts
Feb 03, 2010
12:45 PM
|
Hi Jack65 For me slowness in my left hand, writing, dropping things..clumsiness.my medication helps though. Take care
Emma
|
EMD
215 posts
Feb 03, 2010
2:21 PM
|
Gastrointestinal issues and the lack of predictability in general. When you're healthy you just plan ahead for all kinds of things , including work. With PD...I can do all the planning but never know till the last minute if I'll feel up to participating and even then I may have to leave early or make some kind of adjustment if meds aren't working well or I'm too stressed.....etc, etc, etc....as you each know (in your own way)
|
bbira
164 posts
Feb 03, 2010
2:35 PM
|
Hello Jack,
I think my biggest frustrations with having PD are the loss of dexterity in my hands and loss of memory. Also, the fact that I have to take 9 pills each morning when I wake up just to be able to function enough to start my day. These 9 are then followed by another dosage of 4, another 2, and, finally, another 8 when I go to bed.
Take care...Bill
|
kim63
65 posts
Feb 03, 2010
4:45 PM
|
Hello Jack, For me I think It would be emotional issues. Accepting that I have it. still have difficulty with that. Frustration at not being able somedays to do what I planned because the body today is not willing.
Kim.
|
fourfather
3 posts
Feb 03, 2010
4:48 PM
|
Wondering what the futue holds. I'm new to this. Before the dx I really didn't know what was wrong with me. My fingers moved slow. I had/have no arm movement. And my leg won't keep up with me. But with the medicine I hardly have any trouble. Except for fatigue.
|
elaine44
59 posts
Feb 03, 2010
5:37 PM
|
In addition to all the above....and a few more...My biggest frustration has been trying to get my family and friends to understand i just cant keep up ! My friends are the best in the world..and they are constantly trying to keep me busy and involved. When i know something is coming up...i dread it. Knowing I'm going to have to put on my happy face and try to keep up. I hate saying....I have to go home .
I love them for trying...but its frustrating as hell !
|
donR
49 posts
Feb 03, 2010
10:15 PM
|
Welcome Jack, You'll notice that PD affects each of us differently. My biggest frustration is getting a good night sleep because of the rigiity and shoulder pain. but I was diagnosed with mild pd symptoms.
Wish you all the best Don
|
Jnoland
80 posts
Feb 04, 2010
5:05 PM
|
While I too share alot of the same problems above, I guess that I'll be the one to go out on a limb here and admit that depression is a battle too. It really gets to me that my body is so unpredictable and that I feel isolated at times. When the good days come they are so great because they are simply good. Period. When the bad ones come along, I tell myself that this will eventually pass. I typically try not to complain but I gotta to tell you, this is no walk in the park at times. Does anyone get tired of trying to pretend like everything's fine while deep down inside it feels like PD is kicking your rear end?
|
Jack65
6 posts
Feb 04, 2010
11:54 PM
|
Thanks for sharing everybody! Wow - makes you realize how this disease can hit you in so many ways. Depression I think was really the first thing that hit me with PD the meds help but yeh there are days when i am so damn low. Also family and friends sometimes I just do not know what to say - I do not want anyone feeling sorry for me! "One day at time" I keep telling myself that.
Health and Peace to you all!!!
|
weewarrior
35 posts
Feb 07, 2010
7:31 PM
|
Jack,
With me it was anxiety and depression. I have a therapist that is my lifeline at times. I also take Effexor and see the best psychiatrist in the world. It helps a lot. Daytime sleepiness gets me too. Fumbling. Now I've developed a stutter. Ahhh Parkinson's. One long letting go. Hang in there. We're all in this boat together. Best to you.
Deb
|
dodger
4 posts
Feb 08, 2010
11:50 AM
|
For me it is getting the left side of my body to keep up with the right. i tend to limp bad and drag my left foot. Everyone always asking if i am ok..
Dodger
|
