Carol41
16 posts
Jun 20, 2009
10:52 AM
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Do you have abnormal eye movement with pd?
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Beccapooh
89 posts
Jun 20, 2009
10:58 AM
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I've wondered this, too. I find it very hard to read sometimes, because my eyes seem to be "shaking" or moving too fast or I end up starting at the left (like I've "forgotten" how to read or something). Is this a "normal" thing for PWP?
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rose of his heart
52 posts
Jun 20, 2009
11:35 AM
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Hi Carol and Becca,
Yep, the fun just keeps on coming with PD, doesn't it? Blurry vision, decrease in blinking, oil gland changes, eyelids that are hard to keep open, difficulty tracking across line of text--all can be effects of PD. If you're having trouble, you might seek out a neuro-ophthalmologist. Mine said he would known that I have PD by looking at my eyes. Good luck!
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Carol41
17 posts
Jun 20, 2009
12:19 PM
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Yeah i get blurry eyes and v tired eyes after just readin 4 a short time,Ive noticed as well when im lookin at sumthn like a number i keep changen eyes not on purpose they change by themselves,do you know wat i mean? :)
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Carol41
18 posts
Jun 20, 2009
12:30 PM
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I cant keep eye contact when talkin 2 any1,even my own sisters :( my eyes keepin moven down and watchin ther mouths its v annoyin! And i think 2 myself i must be v shifty lookin our dont seem 2 be interested in wat ther talkin about
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Mihai
89 posts
Jun 20, 2009
1:38 PM
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Hi all... I'm at the point where I think I need bifocals. Not sure though...maybe it's the PD. I do sometimes have difficulty tracking text. Hmm... Mihai
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rose of his heart
54 posts
Jun 20, 2009
4:41 PM
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Hi Mahai,
You might want to hold off on the bifocals till you visit a neuro-ophthalmologist. A couple of years ago (prior to dx) I got progressive lenses. They never really worked great for me and were less and less effective for reading as the months went by. My neuro-ophthalmologist told me a couple of months ago that the trouble I have been having tracking text is due to convergence insufficiency, in which the two eyes don't work together like they used to. I get to keep my regular glasses but need a separate script for reading. Hope this helps...
Rose
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Mihai
91 posts
Jun 20, 2009
5:56 PM
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Thanks Rose, That's good advice. I have an appointment scheduled for my eyes, but not with a neuro-opthalmologist. I'll definitely give that some thought. Thanks!
Mihai
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EMD
21 posts
Jun 20, 2009
8:13 PM
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So far I would say no eye problems.
EMD
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David
97 posts
Jun 22, 2009
8:33 PM
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No abnormal movement but my eyes are very dry. This causes them to be sore and very tired. David
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Jnoland
18 posts
Jun 26, 2009
5:34 PM
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Caro41, I have had perfect vision all my life until last year at age 43. I made sure I went to an opto with PD experience. After examining me he determined that my vision was affected by PD, but I had nearly normal vision at the time of the exam. As you know, PD affects all of our muscle movements - and the eye muscles ARE included. I was told that just as I tire from moving, my eyes tire too just as if it were a leg muscle etc. I was provided a pair of glasses to use only when my eyes tire. The prescription gives me 20/10 vision. I was also told that I was nearsighted and that I had trouble seeing things far away. (I hope I got that right). Bottom the line, the glasses work! I do not have to use them often, but when I do, it is quite a relief. Also of note, the need usually happens towards the end of the day. Also... I have noticed that sinamet (and/or being tired) affects my reading at times. The lines seem to jump and/or the text seems to wiggle. I can still read, but if it becomes too dificult, I know from experience that the effect will eventually pass. I simply wait a little time and then resume reading. If any others have similar experiences, I would like to know about that too. Thank you, John Noland
Last Edited on 26-Jun-2009 5:42 PM
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michelle
221 posts
Jun 26, 2009
10:45 PM
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This is interesting. I have dry eyes too. But, around the time I started having pd symptoms, I also started having what is dx'd as "ocular migraines". Basically, a spot in the center of my vision starts to blur or waver. Then it spreads outward to the rest of the eye. It's like looking through one of those prism things - you see what you're focused on, but you see 12 of them and they're wiggling. Anyway, they happen occasionally. It may be unrelated to pd, but I think the timing is close to when I started to have pd symptoms. No one knows what causes them, but I wonder if some kind of twitching muscle or nerve could. It's probably not a coincidence that I started having them around the time I started having pd symptoms. I find everything is related.
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David
98 posts
Jun 30, 2009
8:49 PM
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I had an exam that checks periphrial vision about a week ago. Today I received a note from my new Dr.
(my regular Dr.that I liked quit) saying that I have mild glaucoma changes in my right eye compared to the left eye. She wants me to try Xalatan as a precaution? Any thoughts on this? I have very bothersome dry eyes. I had, a few years ago, plugs installed into my tear ducts to help with the dry eye and it did help for quite some time. A few months ago I had the other two tear ducts plugged. That worked very well. Too well in fact. There always seems to be a trade off with any of my pd treatments and this is no exception. With all four tear ducts plugged there is no where for any excess tear to go but to run down my nose or down a cheek. Left eye perfect, no excess tears, right eye, not so lucky. I always carry tissues with me to mop up. My eye became so sore from the constant mopping I had one of the plugs removed. That's why I saw the new Dr.. Damned if I do and damned if I don't.
Michelle, my daughter was diagnosed with ms about eleven years ago. She has experienced similar symptoms to the ones you described. She often has to deal with double vision and frequently has migraines. She doesn't like to share the particulars so I can't be specific. David
Last Edited on 30-Jun-2009 8:52 PM
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clancysmom
38 posts
Jul 01, 2009
6:09 AM
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This is interesting. Hey Michelle I get ocular migraines too and have very dry eyes. My eye guy said the dry eye was due to the PD but my MDS said I still have normal blinking ability. So who knows. The ocular migraines started when I was 28 but my first PD symptoms showed up 10 or 11 years later and I'm 9 yrs into the disease. My mom also gets the ocular migraines and she doesn't have PD (she is 69). Weird. Laura
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Beccapooh
103 posts
Jul 01, 2009
1:36 PM
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So here's my things with my eyes: Transient blurry vision. Was px'd glasses that make things worse most of the time. Find it hard to keep my eyes open sometimes. I'm not actually sleeping, but I just can't keep them open. Weird. My eyes will just pour tears. The skin around my eyes will become chapped from all the wiping away of tears. People often think that I'm crying and I'm not. My eyes water in the sun and the wind EXTREMELY badly. I'll wake up to severely blood shot eyes, for no apparent reason. Sometimes, it will appear as if only half of my eye is blood red, sometimes the whole thing. Bizarre. I have these weird little bumps on my eye lids. Like very small pimples or something. They're not pimples, but that's what they kind of feel like when you touch them. My eyes seem to jump around sometimes. I find it hard to read or to even watch TV. Like they have a mind of their own. Then there's the severe stabbing eye pain. Seems to come and go, just like everything else. I also have very twitchy eye lids. Again, transient. I've also had a few times where my eyes themselves have swelled up. I mean the eyeballs. Like they were bursting out of my head or something. This was horrible and I'm thankful that it's only happened once. I think that that might be it. LOL. Does this sound familiar to anyone and should I mention these types of things to the MDS? Bec
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Carol41
54 posts
Jul 01, 2009
3:16 PM
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Hi beca.i get sum of them symptoms,water eyes when its sunny or windy, twitchin eye lids, pain at the side of right eye that moves in2 my eye and bulgin of eyes especially when Ive bent ova the bath 2 wash my hair they feel like ther gonna pop out
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michelle
229 posts
Jul 01, 2009
10:42 PM
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HI Clancysmom - thanks for the feedback. It's interesting to see which symptoms are pd related and which seem independent. Michelle
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rose of his heart
55 posts
Jul 06, 2009
3:42 AM
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The American Parkinson's Disease Association has a free educational 4- or 6-pager on eye difficulties related to PD. From everything I've read (here and elsewhere), many of us should ideally see a neuro-ophthalmologist. Regular eye doctors, and even neurologists, may or may not know the symptoms and warning signs related to vision and PD. I ALSO WOULD PARTICULARLY ENCOURAGE ANYONE WHO HAS PAIN IN THEIR EYES TO GET SEEN AS QUICKLY AS POSSIBLE...pain can be a warning sign of vision-threatening eye disease.
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David
101 posts
Jul 07, 2009
4:17 AM
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Hi Rose of his heart, I have looked and looked and can't seem to find the 4 - 6 page of info on eye difficulty you are talking about. I do have significant eye issues including pain. Would you help me out and post the specific info or link to these pages. Thanks so much,
David
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rose of his heart
61 posts
Jul 10, 2009
11:23 AM
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It's an educational supplement published by the American Parkinson's Disease Association entitled: #17: Neuroophthalmology and Parkinson's Disease by Andrew A. Berman, MD You can order it (and other educational material) for free from APDA's site at this link: www.apdaparkinson.org/userND/PublicationOrder.asp My guess is you can also call and request it by telephone: 1-800-223-2732 or (718) 981-8001 Hope this helps!
Rose
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