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Dating with pd

kim63
15 posts
Jun 18, 2009
5:50 AM
Not ready yet to be out there. But am afraid no one will want to be with a sick person. Any stories, thoughts or suggestions?
sue90.ernestine
8 posts
Jun 18, 2009
6:38 AM
kim,
Wonderful people are out there, and remember our personality's make us who we are not our illness. you sound like a marvolous person. Don't stress over it and be yourself. And don't settle for less than what you deserve. Be confident, and be yourself.
sue
Beccapooh
87 posts
Jun 19, 2009
1:32 PM
I can honestly say that I've been ill for at least 15 years. I mean, I haven't felt "right" for about that long, maybe longer, really. At any rate, I've only known my current husband for 13 years. So, he's been with me during the majority of my "down hill slide". I must also tell you that his Mother had MS (she passed away last September, may she rest in peace.) and he had to help take care of her for most of his life. When we first met, he told me that he could never be married to someone with a chronic condition. (My Mother also has MS, so I understand that feeling, for sure.) Very prophetic words. Imagine how hard this process has been for me AND him. We both know that he said it and we both know that, at the time, he meant it. So, I'm not sure which would have been harder for him, really. Marrying me KNOWING that I have a chronic condition or learning about it after the fact. I guess what I'm trying to say is...look at it this way, you have the gift of already knowing what's going on with your body. You can know, for certain, that the person you end up with, loves you regardless of the PD. There won't be any surprises there.

Don't sell yourself short. You're a person with several wonderful qualities who just happens to have a disease. Everybody's got SOMETHING wrong with them. Whether that be emotional baggage or physical issues or a bad temper or a bit OCD or messy or whatever. You're not perfect, no man will be perfect. You'll be a PERFECT match!!!

Joshuamax71
12 posts
Jun 19, 2009
3:55 PM
Well sorry to be the downer here but I can tell you that having this condition and being single is not easy. Kim at least you were married, at least you have kids that will be with you for your life. I'm looking ahead at a life in which I am likely doomed to be alone, childless and with PD. To add insult to injury, I am also a man so not to many women want to sign on for a man who won't be able to provide for a family. Last week I almost packed my stuff up in my place, and was just gonna drive, I mean why not? I then figured what's the point, whereever I wake up Ill still be me, still lonely, without any relief in sight.

Kim .... I'd trade with you in a minute

Mihai
84 posts
Jun 19, 2009
5:53 PM
Hi Joshua,

I certainly understand where you're coming from, but don't give up hope. I wasn't married until the age of 34. My wife-to-be knew before we got married that I had PD...it actually made her care all the more for me. The bonus was that she is a nurse! That's going to be a blessing down the road. So, don't let go of your dream for marriage and children. There are many compassionate people out there who won't judge you for your PD. If you'd like to "talk", click on my name anywhere and you will find my personal e-mail address. I wish you all the best...you deserve it!

Peace, my friend,
Mihai

Mihai
85 posts
Jun 19, 2009
5:55 PM
P.S. -- I also now have two wonderful kids...5 years and 1 and a half!!! Keep dreaming...

Blessings, Mihai

kim63
16 posts
Jun 20, 2009
5:55 AM
joshuamax,

Remember women (Most That is) are caregivers we like to look after people.

I feel your pain! I,m not sure what to say except I too have felt like you. Climbing out of the pit of self pity is the hardest thing I've had to do. some days I don't want to and some I have to and some I want to because I like people and need to be positive to get positive energy back.

I work with the general public, to many years to admit to, so have gotten to know people really well. You can defuse anger with Laughter, Sadness with a smile, Loneliness by listening And you can make someone day by the smallest of compliments.

Next time your in line for a coffee, buy for the person behind you it will make their day and yours. Who knows it might be a pretty you lady you might run into again another day. Its small but a place to start.

I have had people do this for me through the drive through. WOW it made my day. So I have done it many times. It makes you feel good and we need that!

Who know whats in store for us. The days I can't cope
words of wisdom here help. (so glad to have found this site) As hard as it is to do you must move forward in a positive direction

Thinking of You
Kim

Mihai
86 posts
Jun 20, 2009
6:52 AM
Just another thought...

No one is perfect. Everyone is dealing with something in life, whether physical, emotional, social, etc... Don't ever think that PD is the worst of any of those things. There are probably (no, there ARE) many people out there with such other "infirmities" thinking the same thoughts.

Take heart...continue to live, laugh, and love. You will find happiness!

Blessings,
Mihai

Joshuamax71
14 posts
Jun 20, 2009
12:48 PM
Kim sorry that this thread became about me.. And I thank you all for your words of support. Unfortunately that's all they are are words and beautiful senarios which I am glad have worked out for some of you. Women are care fivers but the truth is they don't want to get started in that role. I was with someone who left after my diagnosis, and because of it, can't say I blame her really! For anyone readin this I hope you find what you are looking for I am just not hopeful
for myself. It's very hard to connect with someone in perfect circumstances which we all know doesn't exist. When you throw a chronic illness in the mix... Well it's that much more difficult or impossible. I've tried to start relationships with women it just doesn't seem to progress.... Sorry for the long post... I'm just not great this week
Mihai
90 posts
Jun 20, 2009
1:39 PM
Joshua,

I'm sorry you feel so defeated in this. You are in my thoughts.

Mihai

kim63
20 posts
Jun 25, 2009
7:09 AM
Joshua,

I can really feel you anger. People leave for all diffferent reasons right or wrong some we understand others we never will. I will share my story with you. Its hard to do because I stayed so long with someone who had no respect for me. My Husband Left me because after Two children I became Over weight and undesirable to him. I tried my hardest to please him by dieting weight went up and down made no differance to him. He would not have sex with me said I did'nt turn him on. (over 10 years ago)i continued in this manner hoping things would change and because for some twisted reason I loved him. When It started to affect my children , comments about their weight Things changed.( I am over weight but a size 14 remember 46 years old and two kids) Protective mama kicked in and well things just were not going to work. I became sick ( he thought I was faking) And well here I am. Just survived the worst week of my life. MOved from family home to new one. Had to learn to let others do for me as I became exhausted to easily couldnt lift hardly anthing. Many tears have been shed this week but I SURVIVED. iTs my daughters birthday today so I have to put anger on the shelf and do the right thing for her and have her Dad included today(last thing I want to do) Each day a new step forward. I know there will be days where I step back. I'm scared just like you.

Don't know if sharing help you. All these things made me stronger. and I need that strenght to get over my fear.

HUGS TO YOU

Kim

P.S. when were you dx? I,m eight months in (three years of not sures)

Last Edited on 25-Jun-2009 7:12 AM

jhb
50 posts
Jun 25, 2009
9:36 AM
This site followed me once on twitter and they mention PD on their about page.
http://www.disabilitydating.com/

I can't comment on the site as I am happily married, but figured I'd post it in case anyone was interested.

Joshuamax71
15 posts
Jun 25, 2009
2:43 PM
Kim,

Thanks for sharing, Im sure it is very hard right now for you, and Im sorry for that. I think I was Dx 4 years ago.

kim63
21 posts
Jun 25, 2009
6:54 PM
Joshua,

Not that its any of my business but do you have a good circle of friends. The only way I survived this past week was through the grace of friends. I learned that all those acts of kindness come back when you need them most.

Heres a few good questions. What are you afraid of most? Why are you so angry? What frustrates you the most?


My answers probably would change day to day depending on whats going on. But I think not being able to look after myself would most likely top the list. The anger one is hard for me because I can'nt stay mad for very long. Frustion well when people look funny at you. when you want so badly to do something and your body does not cooperate(like typing man its tough lol)

ottergrrrl
168 posts
Jun 26, 2009
4:29 AM
When I met my PWP his (now EX) wife had told him to leave. I don't know what the reasons were. Not my business. He had been dxd for two or three years at that point and no one but her, his boss and his doc knew. He and I worked together and were friends for several months before anything turned romantic (he was separated by then for those of you who may care). I knew something was up because I thought his gait looked off and when I asked he told me about the YOPD, much to his surprise. Most people he told it was an aggravated college rugby injury.

That was about five years ago and I wouldn't trade one moment since - not when he was crazy from Mirapex (no longer, thank god), not the decision to have DBS, not the challenges of getting his programming right, not even on the days still when he is a grumpy SOB because he feels like crap, can't move and is mad because of all of the things he used to do.

And I wouldn't change it because he is a kind, strong, handsome, smart, funny man with a good outlook on life who I am very lucky to say, loves me.

I guess I'm saying to all of you out there, yes YOPD might turn some folks away. You don't want those folks though, even if it hurts. But others of us, we don't care, and I mean that. I didn't care. Didn't matter to me one iota. I would have been more likely to break it off if he'd told me he was a vegan (no offense to you vegans out there, I just like to cook with animal products).

Sure, I've given thought to how it may affect our future but IMO, that's not so bad. It means we are planning to do things now that others might put off until...well, then they never do it. Ya know?

Hang in there. If you open your heart to love, it comes a-callin'. You just have to be patient.

Joshuamax71
16 posts
Jun 29, 2009
10:25 AM
Ottergrrl - that really is great how he was able to go from a bad stituation and find someone like you, like I said , I don't believe it is impossible for one to find love, but it does present some additional issues, ones well worth it judging by your current status. Thanks for the encouragement....and continued good luck to you.

Kim - Unfortunately I am a bit insulated these days and don't really have a close group of friends, really just people I know from work, who are all aware of my PD. My family is not in the area so they are supportive, i like to say but no really availiable.

Ive tried to reach out to people its just hard getting that door, in the face so often. Thanks for the thoughts