I am 33 years.
English is not my primary language so i hope you will understand my writing :-)

I have been doing a lot of tests; ENG, EEG, MRI and Spinal Tap. All normal.

The neurologist found this on last visit:
-Cogwheel rigidity in: Neck, Arms
-bradykinesia/Akinesia in left leg and hands while doing "piano" playing movments and some others excercises.
-Decreased armswing

I Also have but this has not been confirmed with tests:
- Cramps under my feet and calf
- Muscle Twitching (Fasciculations?) in calf and feet. And some all over.
- Moderat fatigue.
- Some light numbness
- My fingers shakes really when i move my wrist (Rigidity i guess).
- Somtimes i feel i have a "foggy" brain. hard to explain.

The neurologist told me it could be young onset parkinson and i am waiting for SPECT scan later i October.

* Does this sound like parkinson?
* Is it normal to have fasciculations / muscle twitching with parkinson?
* Can a SPECT scan confirm parkinson or not.

Have a nice day

I share many of the same symptoms as you and also was scheduled for a SPECT. The impressions/conclusions from the physician interpreting my scan said there was no evidence of profile suggesting Parkinson's. I have not been able to find any information about how much stock I can put in to this result. Because it seems to me if this result is infallible then we DO have a test for Parkinson's and everything I read says we don't....Why do people go years with no diagnosis if this test can say yes or no? My neuro basically patted me on the knee saying, "you don't have Parkinson's" while pushing me out the door...once she read those results she acted like that was it as far as she was concerned. Needless to say I made an appointment with a Parkinson's specialist (nearly 3 months away). If I don't have it I want a specialist telling me so. I am still bothered by her treatment of me, but that is another story.

I posted here asking people about having SPECT, if you search you will find my thread. Most people who indicated they had it (or a PET) seemed to have it as part of a study of some sort. Very few people seemed to have it as part of the diagnosis process. I have searched the internet at great length and find very few people's stories indicating they have had it either. Weird to me.

Where are you, geographically?

Arghhh

Yes, I have all your same symptoms, muscle twitches/fasciculations, numbness along my left side face to toes - fatigue (one of my ongoing first symptoms from 6 years ago now along with bradykinesia) and am now showing signs of rigidity on my right side- funny that my left arm is my arm with decreased swing though, as well as my left leg has delay to it now too. After all that you would think I would have a diagnosis- but I don't HA!!!!! Oh, I'm 37 and have two young children, 7 & 4, my symptoms have been steady since 32 and a few that might have been the very beginning at 25.... official diagnosis now is 'movement disorder' of some type.

Here in the US, most insurance companies will not cover a SPECT or PET scan to try to diagnose PD or any other neuro disease because they are expensive and very difficult for even the best doctor to read. While I've been through the ringer of tests (like you), even a genetic test checking for Stiff-Man Syndrome, everything has come back normal.... and these neuro tests have been ongoing now for 3 years. I'm now on my 5th neurologist (like Lydia- doc after doc turned me away) and am taking Requip XL and baclofen (for my dystonia cramping). My doc is very hesitant to diagnose me with anything- I have many PD symptoms, many dystonia symptoms, and he said to give me a name now may not match what my condition develops into a few years down the road, he wants to be pretty sure what I have before he gives the official word. In many ways it is SO frustrating, but now I'm realizing he is also helping preserve my life- preserve my work as if I did have a dx I would be obligated to disclose it- this way I really don't have to tell my employer or potential employer anything. It doesn't change what I do or don't have, as long as we can treat it and get me the best quality of life... what more could I ask for?

I hope you get some answers with your SPECT scan, but like Lydia, the scan may not give you answers. Definitely though, if your doctor is not a PD specialist, see about finding one.

Thank you for your replies.

I guess i will just jave to wait for my spect scanning.
The neurologist i am going to see is a professor and he have done researching work with parkinson and is concidered to be the best here.

I live in scandinavia working as an airline pilot so a dx will have a huge impact for me, loosing my job. But something is wrong and i can not continue without having a dx either. And i can ofcourse not be flying with my current problems. My neurologist told me for sure that i had an movment disorder but could not tell me if it was "normal" parkinson or not.

have a nice day.

-=SpeedBird=-

The special scans are used mainly in research though a doctor will support it if you can pay out of pocket.