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Message Board>
Single and Dating Issues with PD
brooksie
11 post s
20-Feb-2008
9:04 PM
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Hi, I'm newly diagnosed with both essential tremor and PD. I'm also 39 and still seeking Mr. Right. The odds are already rough for a single, "healthy" gal my age. The hardest part in dating is when to tell someone? I tell dates up front about the ET but am stymied as when to tell a person about the PD as a relationship blossoms. I'm caught between scaring him off and feeling selfish/dishonest by waiting to tell. Anyone else experiencing this? It so sucks. Also, does anyone know of a support group for singles? Thanks!
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Helga
2 post s
21-Feb-2008
7:57 PM
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hi, I've been meaning to get on here more, I have thoughts for you. But I have to get up early tomorrow so I will fill in this weekend. I'm 33, was diagnosed at 30, single, fiesty Aquarius :) Chin up, chest out, heels on! be back.....hun :) helga
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brooksie
12 post s
23-Feb-2008
7:30 AM
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Helga, It just means so much to not feel alone :-) If you want to share privately, let me know. Look forward to hearing your thoughts! Laura
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Helga
3 post s
23-Feb-2008
9:10 PM
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Hey! I believe in telling right away, just because I can't hide it & it beats the "what's wrong with you" questions. I'd love to chat in depth, I'm struggling with finding Mr.Right too,but I'm not sure how much of it is me or is my PD, you know? :) Anytime email me helga_beerator@hotmail.com later Clover (aka, Helga) :)
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Kevin66
4 post s
27-Feb-2008
5:07 PM
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I don't know if this fits but I was DX at 33 with PD and found out it is really Shy Drager Syndrom (MSA). It is a syndrom tha has all of the PD sign's syntoms. It unfortunatly has many other issues that go along with it. They call it Parkinson's plus. It a terminal type. So about the dateing issue, after my wife left me by a e-mail while I was in a re-had (I FOUND SOMEBODY HEALTHY). She just picked up and left. I have had the chance at dateing but am so afraid of the let down again. I have no choice but to tell them about it cause it will depend on the day what is going to happen to my body, what to say if I drop to the floor after getting up to fast and so on. I just hate being alone but hate getting hurt. I am now 37 and am trying to get through this myself. I just want that person that has the heart to start a relationship and understand that it is going to be a day by day issue. I miss the touch of women a plain old hug. We are all young and want that shoulder to lean on or just to be with someone who can make you not think about the medical issue's and have fun (anyone know anyone for me?) LOL Sorry for the spelling!!!
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brooksie
13 post s
28-Feb-2008
6:20 PM
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Kevin, My heart goes out to you :-) I think one thing that living with a disease does is help us separate the wheat from the chaff in our personal lives. I truly believe that if someone loves you unconditionally, they will choose to be with you. We're all gonna go someday...even so-called perfectly healthy people, so shouldn't we focus on cherishing one another in general? I opt to wait a while before I tell a potential partner; I think it's too intimate to tell right away. Hang in there :-) Hey, I think there's a special online dating site for folks like us. I could post the link if you want?
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ottergrrrl
139 post s
29-Feb-2008
6:37 AM
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Hi Brooksie et al, My PWP told me about his PD before we were dating (we met through work). It came up as a response to my question about his off-again-on-again limp. I was expecting a sports- or work-related injury. Surprise! Turns out it was on-off periods of his meds. Anyway, when things turned romantic months later I was glad I already knew. I'm not sure what about having PD is "intimate" and obviously the choice of when to tell someone is yours, but I wanted you to have the perspective of the "datee". I do agree with what you said about a condition like this "separating the wheat from the chaff" - So my question is, why wait until one or both of you are starting to develop strong feelings only to then discover this new person can't or won't deal with such an important part of you? I mean, PD doesn't have to define you, but it sets-up certain challenges, particularly in the long-term. Maybe not on the very first date, but I'd reveal soon thereafter if it were me. Again, just the perspective from the "other side", so-to-speak. No judgement implied or intended. Have a nice weekend, folks!
Last Edited on 29-Feb-2008 6:38 AM
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brooksie
14 post s
2-Mar-2008
9:01 PM
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Ottr, By "intimate", I mean it's highly personal to reveal a medical condition or disease when you barely know a person; what if things end early on for a different reason? Then I'm sharing painful,deeply personal info with someone who may have the briefest of roles in my life. Most don't reveal they may have congenital heart disease or that they may have melanoma to every one they befriend; I imagine because it's easier to hide. Why should Pwp feel compelled to reveal something so personal? I think fewer people understand PD, and I have read that revealing has jeopardized employment for some. Guess I just believe in a person getting to know "me" not the disease first. I agree we shouldn't let PD define us. Well, I'm still rather in disbelief myself and grappling with all the emotional stuff, so I'm rambling. :-) I do appreciate the "datee' perspective, but see it from our side...imagine knowing that most people wouldn't stick around and feeling terrified that because of PD, we're faced with a higher probability of being alone.
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ottergrrrl
140 post s
4-Mar-2008
6:46 AM
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Brooksie, Ah, I understand what you meant by "intimate" now. I guess that sitting down for your first cocktail and starting with "HI, I'm XXX and I have YOPD" is a bit like being at an AA meeting. ;) Good point. And if you've grown to like someone after a little while maybe hearing about PD wouldn't be so off-putting... It is complicated. Anyway, I wish you and the other singletons the best in finding love out there!Happy Tuesday.
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hope
1 post
6-May-2008
11:01 PM
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Dear friends,read your massages ,feel the same Way.I am 44 and divorced for 5 years now ,last year DX with PD ,since then i feel so lonely, maybe before Pd i had more selfsteem.i practice yoga and meditation to gain my energy and inner peace,and it works ,,,some days,,,well nobody post anything for a while ,,,i am wondering where are you? i hope you are busy dating.
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Sparkin50
2 post s
17-May-2008
5:29 PM
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I was diagnosed in 06 but can remember the day I had the onset in 94. I'm still able to take care of myself and drive. I'm ten years older than you. If that doesn't bother you, my email is coupy59@yahoo.com
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Redking
1 post
18-May-2008
11:15 AM
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Hello Brooksie, I am a 49 year old African American male. I am a former US Marine, an avid weightlifter, and I am built like an Abrams tank. I was diagnosed with early on-set PD in 2004. Since being DX with PD, I have been blessed to have had the opportunity to participate in a clinical trial of a new anti-PD drug. The drug that I am referring to was designed to rescue dying neurons and restore the dead ones. After a year since my participation, my PD symptoms are barely detectable. So I have no problem attracting the opposite sex. However, I share your concern about dating with PD. You are right; If I chose not tell someone, it would make me feel dishonest. Besides, they would find out eventually. Having early on-set PD has taken a mental toll on me, which is difficult for others to understand. To be honest Brooksie, I have decided to confine my search for a significant other… to a female that has been diagnosed with early-onset PD. That way I would be in a relationship with someone understands what I am going through. Not only that, but I could better relate to her, and be there to support her, and likewise her support me. I know that this is a long-shot. After all, what are the odds? Then again, what are the odds of one being diagnosed with early-onset PD? Who knows, I might get lucky. RC
Last Edited on 18-May-2008 11:16 AM
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mylove
1 post
23-May-2008
9:37 AM
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I know I'm new to the board, but this is up my alley. My fiance and I met at work. I knew from the beginning that he had PD. He's 13 years older than I, and had his diagnosis 10 years ago. He's doing well on his meds, but was extremely wary of getting involved due to the disease. He is very sensitive to the prospect of leaving me a young widow (not *too* young - lol - I'm forty). With that in mind, I see one of the benefits of our age and health disparity that I will be better able to care for him at some point when it becomes necessary, though at this time it seems well off into the future. I'm not sure I would want to venture into something knowing that I, too, would need that kind of care, unless we had a family network that we would be able to fall back on. As it is, he is strong in my weak places, and vice versa. As far as dating with PD goes... the person you want to hang around is the person who will WANT to hang around, and will stick to that despite your protests to the contrary. The person to whom a diagnosis is not a definition of who you are, but simply a facet of you as an individual as much as blue eyes or flat feet. These things are the true meaning of the saying "in sickness and in health". Find the person who wants to dive into the rest of your life with you, and savor it for all its worth.
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