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---thanks to Penny Brown
PD clinical trials -- website for researchers and patients


10 Mar 2005

From: KWEBSTER  (Original Message) Sent: 1/17/2005 7:10 PM
Contact: Ronnie Todaro
rtodaro@pdf.org
212-923 4700
Parkinson's Disease Foundation

Parkinson's disease clinical researchers invited
to submit study
information to new patient website

Clinical researchers seeking patient volunteers
within the U.S. are
invited to submit information about their
clinical trial to a new patient
website dedicated to Parkinson's clinical trials.

The website, www.PDtrials.org is a free
information service designed to
improve access to information on Parkinson's
clinical trials by providing
a tool for patients and physicians to identify
trials that are actively
seeking patients. The site will also help to
educate patient communities
on the value of clinical research.

The concept of the website grew from a public
awareness initiative known
as Advancing Parkinson's Therapies (APT). APT is
a novel collaboration
between seven leading voluntary patient groups,
private foundations,
government and industry to accelerate the
development of new treatments
for Parkinson's by increasing awareness and
participation of Parkinson's
patients in clinical research.

The site currently lists over 30 Parkinson's
clinical studies recruiting
patients in the U.S., and includes interventional
and observational
studies.

Researchers conducting a clinical study in
Parkinson's who would like to
post information about their study on the website
should send a copy of
the study protocol and a request for publicity by
email to
info@PDtrials.org.

The following organizations have pledged to unite
to support the effort:
the American Parkinson Disease Association, The
Michael J. Fox Foundation
for Parkinson's Research, the National Parkinson
Foundation, the
Parkinson's Action Network, the Parkinson
Alliance and WE MOVE. The
coalition is being coordinated and staffed by the
Parkinson's Disease
Foundation.

###

Additional Contact Information:
Ronnie Todaro, Director of APT:
rtodaro@pdf.org
Ph: (800) 457-6676
Fax: (212) 923-4778
www.pdf.org

Kathy Webster